Like they told us, a dip after coming off ECMO was very likely, but when we left last night around 9:00, she was doing great. Her numbers were great, and she was very tolerable of the poking and prodding from the nurses, so we were feeling very good and thought we may have avoided the dip. Well, Briana just waited a little bit longer to surprise everyone. Apparently, her heart rate was elevated, and it seemed she wasn't getting the oxygen she needed. They put her back on the oscillator, which is an advanced form of the respirator. It delivers oxygen more gently, and does more of the breathing work than the other respirator. They also gave her some medicine to control her heart rate, some more sedative so she relaxed more, and also put her on nitric oxide, which helps oxygen to be delivered to her cells. She is stable now, which I know is a vague term, but it is good. They are just keeping her sedated, and doing more of the work for her for awhile, until she gets over this bump. She is definitely more pale again, but that will get better.
The diaphragmatic hernia experience is definitely a roller coaster. It harshly reminds us that nothing can be anticipated, and remaining in the present is the only way to remain, as hard as that is. We have to wait patiently, hope for the best, quietly celebrate the good, and keep our strength through the bad. Briana has already proven her strength, so we are staying positive and remaining patient.
Please keep praying for our little girl. Thank you.
Jim and Angela